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The LIV Foundation
Supporting families of children facing life altering illness
For some related articles please see the list below.
When your child is diagnosed with chronic illness: How to cope
http://www.apa.org/helpcenter/chronic-illness-child.aspx
10 Ways to Cope with a Child's Chronic Illness
http://www.parenting.com/child/health/10-ways-to-cope-childs-chronic-illness
Summer reading list: Turn your everyday kid into a resilient revolutionary
https://www.adn.com/opinions/2016/05/29/summer-reading-list-turn-your-everyday-kid-into-a-resilient-revolutionary/
Research from Academic Institutions
Children with Chronic Conditions | Michigan Medicine
http://www.med.umich.edu/yourchild/topics/chronic.htm
This Isn't the Way I Thought It Would Be: Coping with a Child's Chronic Illness | University of Florida The Institute of Food and Agricultural Sciences (IFAS)
http://edis.ifas.ufl.edu/fy1079
Other organizations that can help
Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs.
http://www.familyvoices.org/index_html
Caregiver Action Network
http://www.caregiveraction.org/
Creative Arts Therapies: Children’s Hospital of Philadelphia
http://www.chop.edu/services/creative-arts-therapies
Art and Healing Organizations & Programs
https://www.healing-power-of-art.org/art-and-healing-organizations/
Children’s Music Fund
http://www.thecmf.org/
Patient Advocate Foundation
http://www.patientadvocate.org/